Juanma Moreno gets emotional upon meeting the father of the young man who died from butterfly skin: "It encourages us to continue"

The president of the Junta de Andalucía, Juanma Moreno, experienced one of the most emotional moments of recent days after personally meeting José, a father from Córdoba whose son passed away in October 2024 due to what is known as “butterfly skin”.

During the meeting, later shared by Moreno on social media, José emotionally recalled how his son could not benefit from an experimental treatment that was beginning to offer hope to patients with this rare disease. “It was too late”, he lamented visibly moved while explaining that the clinical trial was already yielding good results when they learned of its existence. The father, a native of Córdoba, recounted that his son passed away on October 24, 2024, coinciding with the day of San Rafael and just a few days before they could evaluate new medical options. Even so, he wanted to highlight the work of associations and those who continue to research to improve the quality of life of people with butterfly skin.

The conversation ended with an embrace between the two that moved even the Andalusian president himself. “It has given me a lot of strength to meet you”, José confessed to Moreno during the meeting seconds before thanking him for his work with the treatment for the disease.

Hours later, the leader published a message on Instagram accompanied by images of the moment: “Yesterday's call moved us all and today I was able to give him a hug. José, thank you for having fought so much for your son, for your tenderness and for continuing to care as you do for the well-being of people with butterfly skin”.